I woke at 9 am after only few hours with bright lights and flurries of flashes. I often experience this when I have had too much Morphine. To help reduce my increasing pain I took an extra 10 mg of Zomorph making it a total of 100 mg. I also started taking liquid Inbuprofen again. After my medication and breakfast I called my GP who said that any side affect between Penicilin VK and the diuretic is very rare and suggested continuing with taking the antibiotic. He said faced with the same decision he would take both tablets. He also said I must continue to question drug compatibility. Having read the drug information sheet in detail I noticed that alcohol should not be taken with the pain killing drug Lyrica. This does not bother me as I do not drink much (sob, sob). Janice and I both had my nap between 3 and 5 pm even though I did not get up until 11 am. Taking the antibiotic Penicilin VK was challenging as it needed to be taken on an empty stomach at least one hour before a meal or two hours after a meal. This means 1 hour before breakfast, Lunch, Dinner and Supper is best for me. In the afternoon I managed to do a little work on the drawings I had committed myself to do. As my pain was building up I took 10 mg of oral morphine. Washed my hair using the prescribed shampoo, Polytar, and found that the shampoo was very black just like coal tar soap I took as a child. With pain increasing I took another 10 mg of Oramorph at around 10 pm and then another 10 mg dose just after midnight. Watched some TV and went to bed 1.30 am.

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Our grandchild should have been born last week and on waking I told Janice it would be today. No bone pain just a few aches and pains in my lower back, thighs and legs. I went to the Downderry surgery for my 9.50 am appointment at which my GP prescribed the following; Penicilin VK 250 mg capsules with qty 2 to be taken 4 times a day for my sore throat; Lyrica 75 mg capsules, Qty 1 to be taken twice a day or nerve pain; Politar liquid shampoo for my dry scalp (cradle cap). Unfortunately, there was nothing he could do about reducing the oedema without upsetting balance elsewhere. At 11.30 am I had my foot appointment whilst Janice did the shopping at the local supermarket. The Podiatrist’s were very pleased with progress saying this was the best they had seen for a long time. Janice and I were pleased. The next appointment was Thursday 23rd June at the same time. In the late evening I took 10 mg of Oramorph to help reduce the increasing pain I was starting to experience. The “assisted dying” debate during question time was very interesting. I wondered whether it affected Christian burial as it is a possible option for me as departure time gets nearer. When we got back home I read the information sheet for the tablets and found that the Penicilin VK antibiotic clashed with the diuretic Amiloride I was taking. Being too late to contact the surgery I decided to ask my GP tomorrow whether to continue with the antibiotic. I stopped taking liquid Ibuprofen to see if it would help improve my oedema. In the meantime I decided I would to continue taking the drug. Just before my evening medication I took 10 mg of Oramorph as the pain was becoming unbearable. I found the debate on “Assisted Dying” during Question Time on TV very interesting. I wondered whether taking your own life, assisted on not, would affect being permitted to have a Christian burial. The reason for my thoughts is that this is an option for me as departure draws near. I don’t like pain and I don’t like making a mess, so this rules out hang gliding without a hang glider and trying the stop a First Great Western express with my body as an option. I sat up watching TV spaced with exercising my legs and upper body until the early morning when I went to bed.

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I woke with severe pains in my legs, thighs and felt very tired and weak. Janice decided to call John and Elaine to cancel lunch in Duloe. After my breakfast medication I stayed in bed until Lunch. When I got out of bed, Janice applied Ibugel to my shoulders, lower back, thighs and legs. Even though I was in pain I decided not to take any Oramorph. In the afternoon I did some work on my promised backlogue of paintings. Even though I was absorbed in art I did not need the alarm clock to remind me to take my Penecilin. Disturbingly after showering my weight had gone down from 14 st 7 lbs to 14 st 4 lbs. I adorned myself in Inbugel and E45, No. 7 Face Cream on all the places it was needed (Who’s a pretty boy I thought to myself). I watched TV and then when to bed just before midnight.

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I awoke at 4.30 am in pain. How things can change quickly from practically no bone pain to pain across my shoulders in my neck and lower back. I took 10 mg of liquid morphine to help lower the pain. I also increased my Zomorph by 10 mg to 90 mg. I also applied some Ibugel to my neck and upper right arm and got back into bed. I woke up several times between 5 am and 8.45 am in pain. I had my breakfast at 10 am only using the Weetabix to swallow the tablets. Tired with the pain and lack of sleep I stayed in bed until just after midday. Janice applied another coating of Ibugel to my sore areas. After lunch Janice went to the eye clinic in Saltash for a 1.30 pm appointment to have her eyes tested. No problem with her eyes than these expected when you get older. I decided not to book a GP appointment and keep the 9.50 appointment on Thursday as I was tolerating the pain, sore throat, and oedema. Still had aches and pains in my thighs and legs and I was also very tired. I had a nap between 3 and 5 pm. Janice called Elaine and John to suggest having lunch in Duloe, assuming I was OK. In the evening I became tired again combined with increased pains in my thighs and legs and now some bone pain in my shoulders and lower back. As part of evening medication I also increased my Zomorph by 10 mg to 90 mg bring my morphine intake up to 2 x 90 mg a day, plus any Oramorph for breakthrough pain. Before going to bed my blood sugar was very low so I ate half a bar of sweet chocolate. I was in bed by 11 pm. Janice stayed up to catch up on some recorded TV programmes.

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Best nights sleep for ages. Bed just before midnight and I did not wake until 9.15 am. Just slight aches and pains in the usual places. As I had not experienced any bone pain I reduced my morphine back again to 80 mg from 90 mg. Janice had an appointment for some dental work in Bodmin at 1 pm so she was away from11.30 am until just after 3 pm. During that period I pro I also increased my Zomorph by 10 mg to 90 mg. I would do my computer work upstairs on my laptop and not venture downstairs just in case I fell (still very weak in the legs). I had a busy morning and early afternoon working on the computer planning my mum’s painting, works for the Downderry Summer Exhibition starting the 8th July and a pen and ink drawing for Sarah hall as a going as a leaving gift. No problem with my mid afternoon medication as once you set an alarm clock you always wake up before the alarm goes off. Janice arrived home as expected just as I was having my nap. After my nap I called the surgery to arrange and appointment with my GP to discuss lack of progress with my oedema. I could not get one to day but might get a slot tomorrow if I phone at 8.30 am to make an appointment. I provisionally booked an appointment for 9.50 am on Thursday at the Downderry surgery, with a plan to cancel this if I was successful tomorrow morning. As Janice was home I did some work on the desk top computer downstairs. As my legs were stiffening up I did some exercises each time there was a commercial break. I forget to mention yesterday in my diary that I received a telephone from my good friend and ex colleague Jeppe from Brussels. It was good to hear from him about many family and business developments. He also mentioned that he celebrated 30 years at Motorola recently. Because of not experiencing any significant bone pain I decided to lower my evening morphine dose from 90 mg to 80 mg. Janice and I both had a late night going to bed just before 1 am.

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I had sore legs and thighs when I got up. Because of the increased pain I increased my morphine from 80 to 90 mg again. After my breakfast I was still tired so I stayed in bed until 1 pm. The pain had reduced when I got up. It seems my leg and thigh pain bouts are forming a pattern. It appears to gets worse as the evening progresses and stays until the early morning and repeats itself about every three days. I have also been having a problem of forgetting my mediation and insulin in the mid afternoon. It seems I will have to revert back to using strategically placed alarm clocks. I was glad we watched the Canadian Grand Prix on TV as it was won by Jensen Button, who had 6 pit stops and one drive through penalty. The race turned out to be the most exciting Janice and I had watched. After a night of watching TV we were both in bed by midnight.

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I got up at 3 am with aching legs and thighs. I sat and watched TV and did lots of light exercise during the commercial breaks and eventually going to bed at around 5.30 am. I woke for my medication at 10 am and stayed in bed until 11.30 am. I was tired and after lunch watching some TV and doing some crosswords I looked forward to my nap between 2.30 and 5.30 pm. At 7 pm we were picked up by John and Elaine for dinner at the Squid Ink restaurant in Looe. After arriving we were soon joined by Alan of St John’s Wood B&B and then surprisingly Jocelyn and Derek of Anchor Lights boutique B&B. It did not stop there because they were soon followed by Sara and Graham of Paint-a-Pot, Jayne of Ginger and finally Martin of Larsson’s Coffee House. In total there were 11 of us for dinner. What a pleasant surprise. We were all greeted by Sarah Hall, Owner and Chef. As usual the meal was excellent as was the company, ambience and service. It was a pity that Sarah had sold the restaurant to a Chef from County Durham and next week would be her last week. Janice and I hoped the new Owner/Chef would offer the same menu as Sarah and match her culinary skills as Squid Ink was our favourite Restaurant along with the Blue Plate in Downderry, owned by Chef Nick Barclay. I found out during pre-dinner drinks that Elaine was responsible for getting us all together. So I proposed a toast to Elaine at the start of the dinner thanking her. Also, during dinner I suggested that collectively the old Chamber of Commerce, of whom the main members were present, had a great amount of experience and knowledge, not just in running a business, but in many aspects of life. They were now in a unique position to form an informal group free from any constraints (politically and/or financially) from doing their own thing by picking a project that no outsiders could interfere with. What a great opportunity I thought to myself. However, the suggestion was not discussed during dinner. After a great evening Janice and I said goodbye to everyone and left to catch our 11.20 pm taxi. As I had only taken 80 mg of morphine during dinner at 10 pm I took the remainder of my medication when I got home. We watched TV for a while at when to bed at 1 am. Unfortunately, I was sick just before getting into bed. This because it was over an hour since I took my medication I decided not to take any replacement doses as some would have been absorbed before I was sick.

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Janice collected to blood test result printouts from the Downderry surgery. The Haemoglobin Blood Count (BC) was 9.4 and PSA was 384, up 6 from 378 taken just over a week ago. It will be interesting to find out what the doctors have to say at my next clinic at the Royal Cornwall Hospital Tuesday the 28th June. I still feel less than 100% with mild aches and pains in my shoulders lower back and thighs. My appetite is still quite good and my weight is holding at around 15 st 7 lbs. My main complaint is my oedema that I find painful and uncomfortable. Unfortunately, I am not attending the Great Drag Race this year for heath reasons and associated risks. Even though I am not attending members of my family will be attending with two of my Nephews, Toby and Jojo, with lots of their friends will be taking part as a team. Hoping for the same generosity as last year I sent out an e-mail providing donation details and race registration details as follows. The Great Drag Race is this Saturday the 18th June.  It’s NOT too late to sign up. Don’t forget that you can WALK if you don’t want to run the 10K, and there is NO minimum amount of sponsorship to raise. Just register at http://thegreatdragrace.org and you’ll be able to join our glamorous geezers in Highbury Fields on June 18th. It’s that easy. You can also help us out by posting the following link on Twitter or Facebook and asking your friends to do the same: http://thegreatdragrace.org If you aren’t able to take part, and you aren’t a social media monkey, then you could always make a little donation to our sponsorship page. Every penny goes to Prostate Action, who will use it to fight prostate cancer. You can find it here: http://www.justgiving.com/thegreatdragracesecondeleven/ For further information, and to see pictures from last year’s fabulous event, please visit: http://thegreatdragrace.org I had a nap between 3.30 and 5.30 pm. At 7.30 pm Janice and I went to the Blue Plate Restaurant in Downderry for the Downderry Dining Club quarterly dinner. There were 14 of us altogether. The restaurant was full with more that 70 covers. We had a special menu. Janice and I sat next to each other opposite our next door neighbours Adrian and Vivien and next to Jenny from whom we bought our house. Her husband Christopher would have been their but he had recently died. Janice and I knew other people around the table but did not have the opportunity to converse with them. During the dinner I committed myself to submit some works of art for the Downderry Summer Exhibition beginning 8th July. Nothing like putting yourself under pressure.  It was a good evening except that I was nearly caught out with a mad dash to the loo for a number two. All in all The next Dining Club meeting is Friday 9th September. I hope I can make it.

Categories : General

I had my foot appointment at 11.30 am in Liskeard at Podiatry. The foot was still healing well. The same dressing was applied and an appointment made for next Thursday, 16th June at 11.30 am. On the way to the Supermarket, we stopped off at Rob Arnold, Picture Framer, to have two oil paintings framed. After a trip around the supermarket (I sat on a bench and read a newspaper) we went home. I had a nap between 2.30 and 4 pm. I telephoned the surgery to see what my blood test results were. My PSA had not yet come in but the Blood Count (BC) was 9.4. This meant my BC had risen to 1.5 from 7.9 in 7 days being the result of 2 units of blood during the transfusion.

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Mum, Roy and Stella went home 10.30 am after I returned from providing a blood sample test for PSA and Haemoglobin. It was an emotional farewell for me. After they had gone, Janice and I talked about how everyone was. I had a nap between 4 and 6 pm. We had a delicious meat pie with Jersey potatoes for dinner. Janice and I talked some more and watched TV. Tired, I was in bed by midnight.

Categories : General